Get ready for a long one today - it has been a busy week!
First, Issa left Forever Angels and went to live at Tumaini Orphanage. Issa is a beautiful, loving 4 year old boy - but he was just needing more attention, more stimulation and more freedom than Forever Angels could offer him. He needed older children to play with and since all the Orphanages round here are getting full - we needed to transfer him sooner rather than later.
It is always SO sad to let these children leave Forever Angels - especially when they are not going to a family. That is our goal - to find a loving family for each and every child in our care. I know it is not realistic - but it is still my dream and when it doesn't work out I can't help but feel that we failed the child.
Issa will be fine at Tumaini - he will be with Joseph and Mwita and he will be ok. But it is still not the future I had dreamt of for this little boy.
Issa - we love you.
Then, just as we got home from taking Issa to his new home, we had to admit Rebecca to hospital as she had pneumonia. She had a chest infection since we received her last week - but we had been treating her with antibiotics. On Wednesday, she
apparently vomited (and maybe aspirated but no one is sure?) and suddenly her breathing got faster and more difficult.
We took her to one hospital who basically refused to treat her and finally ended up in Casualty at Bugando where she was put on oxygen and antibiotics.
After a couple of days, she was fine again - happy and laughing and entertaining everyone in the hospital! But it was a very worrying few hours....
On Friday we took Elizabeth to her monthly Hydrocephelus clinic. Elizabeth had been a little fussy and had low fever on two occasions during the week....but it subsided quickly and she seemed ok.
None the less - Meghan and I have been very worried about her - we know nothing about Hydrocephelus and had been told nothing by any Doctors. No one seemed to know what 'warning' signs we should be looking out for and any research I did on the internet was about children with very mild cases - no one seemed to have a head as large as Elizabeths and no one seemed to be able to give me any advice on how to care for her?
Anyhow - Meghan and Charlotte took her to clinic and the Surgeon took one look at her head and told them that her shunt was not working and she needed surgery that day to replace / unblock it.
When we think back to Elizabeth 3 weeks ago and compare her to Friday - her head did seem a little less 'boggy' the last few days...but seeing her every day - it is hard to notice such changes?
So - Elizabeth was prepped for surgery. We gave her no food and drink.....and waited. Then we were told that all surgeries at the Hospital were cancelled until Monday because there was no water in theatre. (There has been no power in Mwanza all week and so the city also has no water as it can't be pumped) So we fed Elizabeth, got her settled and left her and Rebecca with Selina, one of my caregivers, for a weekend in hopsital. (Thank you Selina - you are a superstar!)
We can only have been home 5 minutes when I got a call from the surgeon to say that the water was back and Elizabeth had just been taken to surgery! So Meghan and I rushed back and spent Friday night sitting in theatre, being bitten crazily by
mosquitos waiting for Elizabeth to come out of surgery. Finally, around 7pm, she was wheeled out and woke up seconds later.
The surgery went well, the shunt was unblocked and her head immediately was softer and more 'boggy' again. We know much more about shunts and hydrocephelus than we did! However - no one actually seems to be able to tell us whether Elizabeth's head should shrink down to a normal size - or stay the same?! We've had Doctors give us answers from - "It will be back to normal size within 48 hours", to "It will stay the same size" to "She will grow into her head and it wont look so abnormal as she grows".....so no one knows it seems and we have to wait and see what her future holds and how long it may be?
Anyhow - it was a stressful day.
As we left Elizabeth and walked out of the Surgical Ward, a Mamma with a baby (also with severe hydrocephalus) came running to ask me how we had received surgery so quickly for Elizabeth. She took me to a room where there were at least 40 babies all with severe hydrocephelus - some worse than Elizabeth - others just the same and a few, not as severe...but soon to be. These Mamma's explained to me that they had been in the hospital for between 2 and 6 MONTHS waiting for surgery for their babies
but they couldn't afford to pay for it! They were sleeping FIVE babies to a bed, and others sharing mattresses on the floor.
I was astounded. There was one baby in particular who I doubt survived the night she looked so sick. Many also had spina bifida with the most immense tumours on the bottom of their spines (sometimes larger then the babies themselves!)
I just did not know what to say. Why did Elizabeth have surgery so fast? Maybe because we are white? Maybe because we have money? Maybe because we question Doctors and demand treatment? None of these are justifiable. Elizabeth is a beautiful little girl who deserves to be healthy....at least to have a chance at a future - but so are the other 40 babies in that ward....and the other hundreds who are apparently sent away from hospital every day as the ward is so full and they have no where for them to sleep.
One Mamma was telling me about her family back home. She was a teacher but lost her job because she has been off work for 6 months with her baby waiting for shunt surgery. She has 5 other children at home who can not go to school because she has no income anymore to pay school fees - and they are all sick because they are not getting enough food.
The surgery cost us
£23. Just
£23. And yet these babies are lying in hospital waiting to die because they can't afford to have it.
I just wanted to shout at the Doctors and ask what the hell they were playing at. I did in fact, the next day (sorry Darias!). He explained to me that yes, these children are deserving of surgery - but there just is not enough money to pay for them all. Apparently some surgeons came from USA and did a week of free Shunt surgery a few months ago - and cleared the entire hospital of hydrocephelus patients...but the next day it was full again!
Darias (The Surgeon) seemed to think the issue was not doing the Shunt Surgery - but finding the root cause of this high incidence of Hydrocephelus and Spina Bifida in Mwanza. I have just been researching on the internet about a link between hydrocephelus and Mercury Poisoning....and how much Mercury is put out into the Environment in Tanzania during the mining process. I am sure there must be a link here. I have never seen such severe cases of hydrocephelus - or so many of them.
It was just heartbreaking and we left hospital feeling like life just really is not fair.
I took toys to all the babies yesterday and they were so happy to have something to play with. But I want to do more. Elizabeth is special. But so are all of those children? Weeks like this one make you realise that you just can't save the world and what we do do, is such a small drop in the ocean.
Then today (Sunday again you realise!) - I was called to the Baby Home at 6.30am as Bianca was unconcious again!! It was exactly the same time and day as it happened two weeks ago so we are left quite confused but I am starting to think it is a Blood Sugar problem and we will monitor her levels this week to see if it gets low at all. She was fine by the afternoon and back to her normal self.
On a good note - I happened to bump into Gracie in town this week who was adopted 2 months ago. She was so happy and talkative and clearly in love with her new Mummy. It was wonderful to see her.
I want to thank Asha, Beccy and Charlotte for all their hard work this last fortnight. They have been volunteering at Forever Angels and have been wonderful. Becci and Charlotte gave us wonderful medical advice and helped with our (numerous!) medical emergencies and they also painted an amazing car track on our new play area floor. It looks amazing! Thank you so much guys - we have loved having you.
If anyone is interested in Volunteering - we are in need of Volunteers from now to February next year. Please email me (amy@foreverangels.org) if you are interested.
Thank you to all our sponsors - I have sent out Sponsor Updates this past week with photos of your Sponsor Child. We have had such problems with our electricity though that I think many of them failed. If you sponsor a child but did not receive an upadte from me this week - please send an email to let me know and I will try again! Thank you so much for you kind support - we truly couldn't run Forever Angels without it.
Lets hope next week is a little less stressful?.....